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E-book Morbidity in primary care : Epidemiologic data from Family Medicine Network
This website provides primary care morbid-ity data from Family Medicine Network (FaMe-Net), a practice-based research network (PBRN) located in the Netherlands. FaMe-Net is the world’s oldest and still functioning PBRN. The current network is a continuation of two well-known Dutch predecessor PBRNs from which it originated after their fusion in 2013: the Continuous Morbidity Registration Nijmegen (CMR) registering epidemiology since 1967, and the ‘Transition Project’, regis-tering since 1985.1FaMe-Net general practitioners (GPs) provide regular primary care to their listed patients. At the same time as providing primary care, registration for the PBRN takes place. Obvi-ously, all this occurs within the context of the Dutch healthcare system. The PBRN registra-tion is intended and used for research and educational purposes.FaMe-Net registers ‘complete’ morbidity, i.e. all morbidity that patients present to their GP. Data are collected continuously and lon-gitudinally.The participating GPs record morbidity (and other items) in their Electronic Health Record (EHR) named TransHis, that was specially designed for the extensive data registration, facilitating education and research.The data shown on the website are a selec-tion of FaMe-Net’s most essential data. Con-cepts and terminology will be explained below. Data are extracted and periodically updated. The FaMe-Net registration is inno-vative, with ongoing evolvement, and contains more items than those shown on the website in the current version. As parallel processes, this website is continuously in development, with periodical addition of latest collected data, and with planned addition of more col-lected variables. We showed the innovations and the expansion of the FaMe-Net registra-tion from 2016 onwards and more details on the registration network as a whole in a peer-reviewed publication.1For more information on the network FaMe-Net, its historic background, the Dutch health-care system, participating practices, and scientific output, use this link.Data from the FaMe-Net database have been available since 2005. Since then, all data within FaMe-Net have been uniformly classi-fied according to ICPC-2. Data on the website and in the textbook chapters are presented from 2014 because the network and the reg-istering practices have remained quite stable since then, which is important for the epide-miologic description of morbidity. The fusion in 2013 resulted in a significant expansion of the total study population. With more rel-atively young patients joining, the age dis-tribution of the entire population changed, resulting in a smaller proportion of the 75+group. Occasionally, individual registering practices may join or leave the network.
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