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E-book Testing Knowledge : Toward an Ecology of Diagnosis, Preceded by the Dingdingdong Manifesto
In the beginning, when the world was just fifty centim-eters long, there was Jeanne’s inquiring face. A five-year-old face, flush up against the months-old fragment I then was, my opaque little mole eyes fumbling across this earliest of landscapes, my sister’s face watching me. She smiles, I smile. I smile, she smiles. She gives me a quick slap, I cry, she smiles, I smile, she gives me another quick slap, I cry, she smiles, I smile. Late at night, we bond. My father bursts in, he sees me in my crib, he sees Jeanne as she leans over me and gives me a quick slap, he sees me cry, he slaps her, she cries, I cry, we cry, he gets angry. He doesn’t understand. Jealousy, hostility, who knows what he assumes, but he thinks: here’s a problem that needs fixing, separate them.In the beginning and evermore, the limits of the Earth, its firmament, its floor, and its ceiling, they’re Violette, who tackles everything with an eight-year head start, in other words an entire lifetime. Violette has a whole life on me, she goes on ahead, far in front, as big as the sky. She scatters her protective pheromones around me, something quakes in her when it quakes in me, our con-nection draws on resonance, and whether she’s here or not, it’s a thing of taut threads and stiff winds that carry fast and far. Early on, thanks to her, I learn that uncon-ditional love does exist. At the same time, thanks to her, I learn that all love is not equal and that rarely is love so verily unconditional. I can act out, I can be away for years on end, I can fling myself every which way: she’ll check if I’m still alive, sometimes gently reproach how I am mistreating myself, and then lets me go, loving me as always, which is to say without the slightest qualifica-tion, unequivocally.There you have it. Nuzzled against me, one builds my self-awareness, and the other, awareness of the world around me, danger/no danger. (For a long time I thought none of this was mutual. I thought that for them we were just three sisters, and that I was the only one who saw it differently: the three-of-us.) My existence is stitched in double lining. And if I’ve forever sought to break these seams, to pierce them, to blaze my way through them, it’s because wherever I go, they will always keep me together. When we learned that our mother had Huntington’s dis-ease, I hurried. I’m like that, I hurry, I rush things, I tear along, I rough draft, because all of my trials and errors are padded by my sisters, my double lining. It’s not about rebelling or getting defensive about overprotective care, just the opposite: my sisters exist and so doing protect me, and so I am blessed with an incredible gift, the pow-er-cum-duty to take risks.
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