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E-book Stem Cell Transplantations Between Siblings as Social Phenomena : The Child’s Body and Family Decision-making
Questions concerning the ethical status of children, and their position and their relationships within families, have been widely debated in recent moral philosophy and biomedical ethics, as well as in pedagogic sciences and sociology. This volume is intended to contribute to these interdisciplinary debates from a very specific angle. Combining philosophical, ethical and qualitative empirical research, it focuses on a medical practice that brings out a particularly challenging and complex social and familial situation, thus illuminating family responsibilities and their conflicts, children’s dependency, the child’s body with all its meanings, and the specific roles of family members in a transformative situation. The practice concerned is the transplantation of bone marrow between siblings who are children at the time of transplant. These renewable haematopoietic stem cells, derived from the marrow of the hip bone, can serve as a medical therapy for the sick brother or sister children’s dependency, the child’s body with all its meanings, and the specific roles of family members in a transformative situation. The practice concerned is the transplantation of bone marrow between siblings who are children at the time of transplant. These renewable haematopoietic stem cells, derived from the marrow of the hip bone, can serve as a medical therapy for the sick brother or sister.Bone marrow transplantation is a standard treatment for leukaemia, Fanconi anaemia and other possibly fatal diseases of the blood system. If a person has a matching tissue type, they can act as donors (or be treated as donors) even if they are as young as 1 year old. Since it began in the 1970s, this procedure has raised ethical questions about the autonomy and welfare of the donor child, and concerns about the instrumentalization of the donor’s body. For genetic reasons, the siblings of patients are often matching donors, (much less frequently, parents are suitable for donation) and if the patient has childhood cancer, sibling donors are often children as well. The extraction of bone marrow poses only a small medical risk to the donor but is in other ways a significant intervention into the donor’s bodily integrity that carries multiple meanings and affects family interactions, both in their present lives and in the future.
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