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E-book Encountering Pain : Hearing, seeing, speaking
here may not yet be a cure for chronic pain but there is room for ‘accompanying’ people with pain along their journeys. Persistent pain makes demands on language inextricably bound up with the demands of moving beyond our individual experience to empathise with that of another. It raises ethical challenges in its management unlike those associated with any other condition (Schatman 2011). This book attempts to address some of these challenges by providing a guide through personal testimonies, creative extracts and cutting-edge science. The interdisciplinary nature of the volume is crucial, since dialogue between those working in the medical sciences and those in the arts and humanities remains woefully inadequate. In interro-gating the struggle to communicate pain, the volume places discordant paradigms side by side, shifting register between creative, academic and personal contributions. Together they offer new knowledge and hope. The volume starts from the premise that those living with chronic pain feel the pain they say they are feeling and suffer in diverse ways as a consequence. Pain can have a devastating impact on lives, resulting in a loss of confidence, feelings of worthlessness and lack of purpose, as well as leading to problems with finance, employment, relationships and sense of identity. We hope that by raising awareness of pain’s impact on people’s lives and on their communities, this publication can help the healing process. Pain is fast becoming a central issue for policy-makers and the editors and authors seek to contribute ways of improving the lives of patients, healthcare professionals and the wider community. nce obvious causes have been ruled out, chronic pain is largely diagnosed through language. Yet it is notoriously difficult to communicate (Semino 2013; Notcutt 2012). Defined as having lasted for more than three months and resulting in central brain changes, chronic pain no longer acts as a warning but as a faulty signal becoming at best ‘a confusing label’ and at worst ‘hopelessly inadequate’ (Boddice 2014). Some academics have argued that pain resists description in language while others claim that it can generate language, considering pain a nexus where feeling and language overlap (Jung 2019). It remains hard to capture within the commonly used verbal or numerical rating scales, presenting a problem both to those who require and those who provide treatment. Those in pain seek to express it not only linguis-tically but also through bodily movements, emotional reactions and artistic expressions. This was the starting point for the arts and health research project, Face2face (https://www.ucl.ac.uk/encountering-pain/past-projects), on which the conference and this volume builds. Unlike an earlier project, Perceptions of Pain (see Padfield 2003), Face2face focussed mainly on facial pain. Facial pain has all the challenges associated with musculoskeletal pain, as well as additional ones specific to its role in daily functioning, such as, eating, drinking and talking. The central strand of the Face2face project was the co-creation with patients of photographs that reflected their unique experience of pain. That the images were co-created was very important so as not to re-appropriate patients’ experience after their many diagnostic imaging processes in the hospital.
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